zaterdag 23 april 2016

Symptoms



This will probably become the longest post I will make here and I want to excuse me beforehand for any impression I may make (*) for the very elaborated but probably (knowing myself) not even exhaustive list of the main (I think) symptoms I experience during the last year:

Disclaimer: since the list of medical symptoms is this long, it is probably very hard to find a line in this. Especially because I would like to be diagnosed and given the strange and unexpected questions I heart from doctors (e.g.: do your hands or feets get cold easily - yes they are always in fact) I don't know how to discriminate between what may be a symptom of a disease or what just may be a symptom of a normal healthy human.
Keep in mind that I write this down, having shopped from doctor to doctor in different periods of time and staying behind now with a life quality that is very close to 0, so I do will write every detail that I am able to percept in my body.


Fatigue ++++++
Muscle weakness ++++++

Joint pains and aches or itchings, esp in knees, fingers, wrists
Joints may be red, swollen and very itchy
Joints may be painful 
This problem inceases when use of the joints
Tendon infections in knees
Easily pain in tendons
Tough please notice pain is not one of my major issues and is rather uncommon in whatever disease I may have

Skin and rashes


Cracked finger nails, with a little red spot, vertical lines, easy cracking
Very thin and sensible hair
Very pale face
Unclear fatty skin in the face
- a rash on the scalp, psoriasis or seborhaisch eczema
- rash on the face, around and on the nose
- rash between breasts
- itching after sitting in the sun, especially in the cleavage zone or on the upper back
- suddenly red small round itching patch where I can wake up with, disappears by itself
- dark red / purple points on legs, usually three in a line. Ever called "linear rash pettern by my doctor"
- moles that seem to infect from theirselves apparently
-  lots of wrats and other little skin tumours (no doctor called them ever that way) but my pale skin looks like a pancake...

- Very Dry mouth with always aftosis or swears, in mouth or throat
- Very dry eyes
- Chronic infection of the right eye, only goes away by cortison medication so it stays there
- right eye has a strange gaze

Infections all the time:
- throat aching ++ (but since what I do now live with, considering I have less throat aching last months, I would do everything to get it back and trade it for the symptoms I have now :-s)
-  Upper airway infections ++
- long infections: common

Heart palpitations at night when I go down lying to rest (very disturbing)
extrasystoles
pauses (lasting no longer then 3 seconds happily)
Body temperatures rises very highly at night









Urine output also rises very high at night ...

Since a couple months:

- exhaustion
- extremely fatigue
- extreme muscle weakness
- feeling physically empty, but mentally i still wanted to do it all
- start to feeling mentally quiet numb too and trying to ignore my body which seems not able to do anything aymore
- have to go to bed around 6-7 pm .....
- took sleeping pills (had a busy job)
- stopped with them and take a beta blocker instead, though sometimes so tired that I feel like I will die if I don't take them (heart seems to shutter, breathing becomes more like a 90'old men that is dying than of a 30 years old woman
- feeling that I am old, done, aged, worn ...
- feeling that my body is phyiscally completely, but completely, empty
- everything costs a lot of effort and most of the time it is too difficult

So since this period, my life quality is zero: I am not able to do my work anymore, nor my hobbys, not even able to see my friends, not to do something nice with the people I like like do a terrace in the sun, have a drink, go to a restaurant or the movie, ... My body just won't do it anymore for me and I can't make appointments because I can not predict how my body will be that day ...or evening.
Well making appointments in the evening is just not an option anymore whatsoever since I am in bed at toddler's time...

Since I do love my job, I have the best colleagues ever, I loved my bosses and I am sure there is still so much I could learn there and made a lot of progress and I finally got that chance to do what I have always loved to me ... it is like a dream I was living in, I also want to be in the sun (it is spring time now) and I want to be busy with my hobbys and just doing anything like a 30 year old woman is supposed to do: buy a house, get a boyfriend, get children (if possible with my endometriosis, thank you very much prof Koninckx for operating me and giving me back my life when I was 24 ... :) ).



(*) keeping hypochondria, munchausen syndrome or just being an attention whore in mind


P.S.: I know I am healthy. ;)

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