30 yrs old not being diagnosed with a disease helping me moving forward, while I can't... Hoping to one day help epidemiologists or be one myself to make the puzzle fit and help many people with unexplained medical symptoms out their suffering.
zaterdag 23 april 2016
Adolescent 18 - 24
Symptoms or diseases:
- heavy stomach pains and bladder infections
- heavy nausea
- fainting from pain
All which would later turn out as endometriosis at my 24th (2010): 2 endometriomas in each ovary, a cyst along the uterus and a nod in the douglas hole
2003: Gilbert's syndrom
2007: Chronic Fatigue syndrome (...)
2011: unexplained disease during approx 4 months (see other blog post)
2013: Chronic Fatigue syndrome and 16/18 valeïxpoints of fibroymalgia positive
2016: CFS is excluded: too much physical symptoms (see other blog post)
Unfortunately, I do not believe in CFS or whatever they want to call it, still it is not a fitting explanation for me, happily now doctors believe CFS can't be the explanation anymore.
A more funny side story: health care law add extra criteria to fit in CFS to claim rights on ill-benefits, now your BMI needs to be > 18. Unfortunately, that never happened to me in 30 years now either, despite daily efforts.
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