zaterdag 23 april 2016
LAB URINE SAMPLES
Oct 2006: Protein trace
Urobilinogeen trace
RBC C 6 +
Mar 2010 RBC Heem Pos 2+
Preop Urobilinogene Pos
RBC C 162+
Apr 2010 WBC esterases trace
Urobilinogene trace
WBC C 206 + +
Oct 2011 Protein trace
Urobilinogene trace
Ketons Pos
Feb 2013 WBC esterases Pos 1+
RBC Heme Pos 2+
Urobilinogene Pos
WBC C 60 +
RBC C 48 +
Oct 2013 Protein Pos
Urobilinogene Pos
Bacterias 4520
Nov 2013 WBC Esterases Pos
Protein Pos
RBC Heem Pos
Urobilinogeen Pos
Microscopical mucus +
WBC C Pos
RBC C Pos
LAB results BLOODWORK
I am only going to mention the deviated results, sorted by date.
A marker not appearing may mean: it has never been tested during the bloodwork or the results were not abnormal.
Please feel free to ask me for more information, it may help me and who knows how much people out.
2003: Iron: 27 -
Iron/transerin 0.11 -
Neutrofiles % 75.5 +
Alfa 1 2.0 - (proteïntest)
Gamma-GT 6 -
Bilirubine Total 1.94 +
Bilirubine Direct 0.59 +
Bilirubine Indir 1.35 +
CRP 1 +
Colour serum yellow
Mar 2006: MCV 99.8 +
MCH 32.9 +
Neutrofiles # 2 -
Neutrofiles % 38=
Lymfocytes % 52.7 +
Bicarbonate 30.1 +
Bilirubine total 1.14 +
Lipasen 63 +
Glucose BGA 122 + (arterial)
May 2007: MCV 97.0 +
MCH 32.9 +
Neutrofiles # 1.4 -
Neutrofiles % 33.1 -
Lymfocytes % 58.7 +
Epstein-Barr EBNA Pos
Oct 2007: MCV 97.9 +
WBCC 3.97 -
Neutrofiles # 2.1 -
Neutrofiles % 33.1 -
Lymfocytes % 58.7 +
Treponema pallidium As 1.58
Apr 2008 Transfer saturat 47 +
Ferritine 13 ondergrens
Zink 88 ondergrens
Bilirubine total 1.99 +
Mar 2010: MCV 96.8 +
Pre-op Kalium 3.33 -
Chloride 108.8 +
Anion Gap 9.8 -
Creatinine 0.50 -
CRP 6.8 +
Mar 2010: Hemoglobin 10.4 -
Post-op Hematocrite 0.32 -
RBC C 3.34 -
Monocites 10.6 +
CRP 5.6+
Mar 2010 Hemoglobin 11.8 -
Post-op Hematocrite 0.366 -
RBC C 3.71 -
MCV 98.7 +
Neutrofiles # 2 -
Alfa 2-globuline fr 7.0 -
Albumine fract 53.3 +
Bilirubine total 1.35 +
Lipasen 66 +
CRP 2.6
Apr 2010 Hemoglobin 11.9 -
Post-op Hematocrite 0.367 -
RBC C 3.80 -
MCV 96.6 +
Neutrofiles # 2.1 -
Bilirubine total 1.13 +
Jul 2011 MCV 99.5 +
MCH 34 +
Neutrofiles # 2.1 -
Lymfocytes % 50.6 +
Bilirubine total 1.33 +
Sep 2011 MCV 98.2 +
MCH 34.2 +
Imature reticulocyte fraction 4.8 -
Erytroblasts counts 0.80 -
Neutrofiles # 1.8 -
Monocytes % 10.1
Bilirubine total 1.74
LDH 483 (possible hemolysed blood)
Oct 2011 MCV 98.0 +
MCH 33.6 +
Neutrofiles # 1.9 -
Lymfocytes % 50.6 +
RBC 3.7 -
WBC 3.4 -
Anion gap 10 =
Bilirubine total 1.41 +
Bilirubine direct 0.24 +
Alkalische fosfatase 25 -
Tot proteïn (plasma) 6.4 -
PT (%) 86 +
CRP 7 (on 8th of October 2011)
EBV VCA IGG Elisa positief
Oct 2011 MCV 97.6 +
MCH 33.6 +
Neutrofiles # 1.9 -
Lymfocytes % 50.6 +
Bilirubine total 0.75 = (! 1st x normal value!!)
Bilirubine direct 0.20 =
CRP <0.2 (on the 25th of October 2011)
Nov 2011 MCV 100.3 +
MCH 33.7 +
AST 34 + (possibly hemolysed sample!)
LDH 764 ++ (possibly hemolysed sample!)
CRP 29.3
Dec 2011 MCV 100 +
MCH 32.7 +
Neutrofiles # 2.0 -
Basofiles 1.4 +
Parkeet allerg 29.9 +
Pidgin 31.4 +
Moult 22.4 +
Dec 2012 MCV 99.3 +
MCH 32.8 +
Fosfate (anorg Fosf) 0.68 -
Folaat 573 = (438 - 1070)
Vit B12 329 = (191 - 663)
Bilirubin total 0.89 = !!
CRP 13.3
Oct 2013 MCV 98.8 +
MCH 32.6 +
Neutrofiles # 1.9 -
Eosinofiles % 11.7 +
Eosinofiles # 0.6 +
Bilirubin total 1.70 +
Cortisol morning 34.3 +
Nov 2014 MCV 98.1+
MCH 32.1 +
WBC C 3.52
Neutrofiles # 1.5 -
Basofiles 1.4 +
Anion gap 20.1 +
Bilirubin total 1.97 +
Ferrum 192 +
Transcortine 71.8 +
Immunology C4 0.15 -
Nov 2014 WBC 3.1 -
Neutrofiles 1.52 -
Complement C3 81 -
Immunoglobulines
Cortisol non-evening 34+
Lymphocytes subpopulations
CD 19 % (B-total) 18.1 +
CD3-CD16.56 (abs) 0.07 -
Feb 2016 Bloodplatelets 140 -
Neutrofiles 1.96 -
Eosinofiles 0.8 -
Lymfocytes 52.2 +
Poikilocytose +
Atypical lymphocytes +
Iron - 51
Morning cortisol 21.5
Cortisol after ACTH 32.6 +
22.6 +
23 +
Symptoms
This will probably become the longest post I will make here and I want to excuse me beforehand for any impression I may make (*) for the very elaborated but probably (knowing myself) not even exhaustive list of the main (I think) symptoms I experience during the last year:
Disclaimer: since the list of medical symptoms is this long, it is probably very hard to find a line in this. Especially because I would like to be diagnosed and given the strange and unexpected questions I heart from doctors (e.g.: do your hands or feets get cold easily - yes they are always in fact) I don't know how to discriminate between what may be a symptom of a disease or what just may be a symptom of a normal healthy human.
Keep in mind that I write this down, having shopped from doctor to doctor in different periods of time and staying behind now with a life quality that is very close to 0, so I do will write every detail that I am able to percept in my body.
Fatigue ++++++
Muscle weakness ++++++
Joint pains and aches or itchings, esp in knees, fingers, wrists
Joints may be red, swollen and very itchy
Joints may be painful
This problem inceases when use of the joints
Tendon infections in knees
Easily pain in tendons
Tough please notice pain is not one of my major issues and is rather uncommon in whatever disease I may have
Skin and rashes
Cracked finger nails, with a little red spot, vertical lines, easy cracking
Very thin and sensible hair
Very pale face
Unclear fatty skin in the face
- a rash on the scalp, psoriasis or seborhaisch eczema
- rash on the face, around and on the nose
- rash between breasts
- itching after sitting in the sun, especially in the cleavage zone or on the upper back
- suddenly red small round itching patch where I can wake up with, disappears by itself
- dark red / purple points on legs, usually three in a line. Ever called "linear rash pettern by my doctor"
- moles that seem to infect from theirselves apparently
- lots of wrats and other little skin tumours (no doctor called them ever that way) but my pale skin looks like a pancake...
- Very Dry mouth with always aftosis or swears, in mouth or throat
- Very dry eyes
- Chronic infection of the right eye, only goes away by cortison medication so it stays there
- right eye has a strange gaze
Infections all the time:
- throat aching ++ (but since what I do now live with, considering I have less throat aching last months, I would do everything to get it back and trade it for the symptoms I have now :-s)
- Upper airway infections ++
- long infections: common
Heart palpitations at night when I go down lying to rest (very disturbing)
extrasystoles
pauses (lasting no longer then 3 seconds happily)
Body temperatures rises very highly at night
Urine output also rises very high at night ...
Since a couple months:
- exhaustion
- extremely fatigue
- extreme muscle weakness
- feeling physically empty, but mentally i still wanted to do it all
- start to feeling mentally quiet numb too and trying to ignore my body which seems not able to do anything aymore
- have to go to bed around 6-7 pm .....
- took sleeping pills (had a busy job)
- stopped with them and take a beta blocker instead, though sometimes so tired that I feel like I will die if I don't take them (heart seems to shutter, breathing becomes more like a 90'old men that is dying than of a 30 years old woman
- feeling that I am old, done, aged, worn ...
- feeling that my body is phyiscally completely, but completely, empty
- everything costs a lot of effort and most of the time it is too difficult
So since this period, my life quality is zero: I am not able to do my work anymore, nor my hobbys, not even able to see my friends, not to do something nice with the people I like like do a terrace in the sun, have a drink, go to a restaurant or the movie, ... My body just won't do it anymore for me and I can't make appointments because I can not predict how my body will be that day ...or evening.
Well making appointments in the evening is just not an option anymore whatsoever since I am in bed at toddler's time...
Since I do love my job, I have the best colleagues ever, I loved my bosses and I am sure there is still so much I could learn there and made a lot of progress and I finally got that chance to do what I have always loved to me ... it is like a dream I was living in, I also want to be in the sun (it is spring time now) and I want to be busy with my hobbys and just doing anything like a 30 year old woman is supposed to do: buy a house, get a boyfriend, get children (if possible with my endometriosis, thank you very much prof Koninckx for operating me and giving me back my life when I was 24 ... :) ).
(*) keeping hypochondria, munchausen syndrome or just being an attention whore in mind
P.S.: I know I am healthy. ;)
Adolescent 18 - 24
Symptoms or diseases:
- heavy stomach pains and bladder infections
- heavy nausea
- fainting from pain
All which would later turn out as endometriosis at my 24th (2010): 2 endometriomas in each ovary, a cyst along the uterus and a nod in the douglas hole
2003: Gilbert's syndrom
2007: Chronic Fatigue syndrome (...)
2011: unexplained disease during approx 4 months (see other blog post)
2013: Chronic Fatigue syndrome and 16/18 valeïxpoints of fibroymalgia positive
2016: CFS is excluded: too much physical symptoms (see other blog post)
Unfortunately, I do not believe in CFS or whatever they want to call it, still it is not a fitting explanation for me, happily now doctors believe CFS can't be the explanation anymore.
A more funny side story: health care law add extra criteria to fit in CFS to claim rights on ill-benefits, now your BMI needs to be > 18. Unfortunately, that never happened to me in 30 years now either, despite daily efforts.
Medical family history
Paternal:
Grandfather: livercancer, alcoholabuse
Grandmother: unclear cause, sudden death at young age
Aunts: reumatoide arthritis, hyperthyreoidism
Father: suïcide / no clear medical record
Maternal:
Grandfather: Livercancer
Grandmother: Alzheimer's dementia, cachexie, lung infection, reumatoïde arthritis (extreme form)
Aunts/uncles: Skin cancer in a nephew and niece, complete albinism in two uncles, psoriasis, chrohn's disease
Mother ('52)): Double hernia in the lower back, skin cancer in pre-stage, collitus ulcerosa, breast cancer
Brother ('83) : unexplained rashes, unexplained coughing, unexplained yellowishing skin, yeast infection, swollen and red/purple hands, ...
Sister ('92): muscle cramps esp in legs, fatigue, faint feeling, pale, very slim BMI <18, skin itching everywhere
Childhood - medical "benchmarks"
Since it is time sparing and since I have my deepest respect for doctors who like to be busy with their profession after their hours, looking to help out patients our suffering people who aren't even of their own, knowing how demanding their work already is:
I will do this schemetically so it can be time-efficient as well:
Toddler:
Up to 6 years: pleuritis all the time - antibiotics cures - hospital admissions
impossible to go to nursing school
extremely pale, very slim
always W sitting
bunching with head against bank while singing (rhytmic movement)
Extremely clumpsy
10 - 14:
frequent blatter and kidney infections -> antibiotics
upper airway infections all the time
frequent all infections that were around
stiff like hell in gym classes
tried a lot to gain weight and increase colour in face (beta caroten, iron,... nothing helped)
2 times herpes zoster (zona) infection
little biking accident (car throw its door open when I passed by hitting me sidewards and throwing me on the streets)
Extremely clumpsy
Stomach problems and extrem diafragm stomach problems
15-16:
Bitten by a tick, removed it out of my body
removed numberous ticks out of animal bodies
Eppstein Barr infection
Nose operation because of accidentx 3
fatigueness very easy (had to lay down after school, not able to do anything)
swollen Lymph nodes in neck for sure
Candida glabrata vaginal infection up until 23 years of age
Stomach problems / extreme diaphragma stomach problems
Let's help unnecessary suffering out of the world!
This blog is aimed for everyone who has a variety of symptoms who are debilitating in daily live but the doctor's around you can't figure out what is wrong exactly.
Of course no online "consult" or "advise" can ever replace a real doctor's consult and there is no guarantee the information that might be brought forward by so called experts is real or verified. So the owner of the blog is not responsible for any of the answers, advices, nor the consequences resulting from following it.
This site is mainly made for people who suffer from several invalidating symptoms for over years and have seen almost every doctor, but no one could help them out.
The goal is to find rare diseases.
For real help or acute cases you of course deed to go to a doctor in real life or an emergency room.
I will start of with my case. I hope we can all find together the answer here, though please don't feel disturbed if you have another or similar case to post it here.
Let's help unneccessary suffering out of the world, by diagnose people quick and correctly!!
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